Fwd: Fwd: Be very afraid! – Chain Emails

December 21st, 2009 § 4

Ever since my mother discovered the world wide web late last year, she has made it her duty to forward me every scary, alarmist email that’s sent to her from one of her buddies.  You know, the ‘boogie man is lurking behind the bush’ type emails that’s been forwarded about 40 times before it gets to you. These emails usually tells a brief story about a horrible crime that happened to a random woman, but somehow, you’re not able to find any evidence of this published anywhere.  Most of the time, I just ignore and delete these emails.  Sometimes I  research the stories so that I can respond to my mother telling her that its not true.  She then responds with a sigh of relief.

These modern urban legends may have a shred of truth, but they are mostly false and designed to scare the daylights out of individuals, mostly women.  Who or why these stores are made up and passed around, I do not know. I used to get these emails from random co-workers, and now my mother is sending them to me.   I remember there was one about the “deadly germs” on the bottom of your purse from when you set it down in a public restroom (or anywhere else).  I remember reading how horrible and nasty these germs are. The thing is, there are germs on the bottom of your shoes.  The same germs that many people don’t think twice about when walking into their homes with their shoes on.  These are the same dirty, non sterile floors that their babies crawl on.  Despite the odds stacked against them, they manage to live.

I think we  have enough real reasons to be fearful at times.   I don’t need to made up stories to keep me aware of the real dangers out there.

No more emails, please!

Body Image Confessions

December 4th, 2009 § 11

I was thinking about my body image a few days ago when I was walking home from the gym.  Looking over the years since I’ve became aware I have a physical body, I’ve never been happy with my appearance. I’ve had and still have my moments, but I’ve never been totally content. I wrote some of the self inflicted struggles I’ve had with this in a post back in the spring called My Own Worst Enemy.  I guess I should also say I am my own worst critic.

As I strolled though the neighborhood with my cane and small gym bag, I scanned my brain for reasons why I am  still feeling the way I’m feeling about my body despite the fact that I have bigger fish to fry when it comes to my body and health.  I outlined some reasons that started early in life in that post, and wonder if its realistic to resolve those issues as an adult.  Is it something that I have to keep working at?  Its obvious to me that simply telling myself “its in the past, move on” doesn’t work. I guess some people would  blame the media for my feelings, but I don’t watch much TV and the only magazines I read are trade magazines and journals.

I actually look at other women in real life and envy their appearance.  The thin woman who can eat what they wish – you know, simple foods like bread. Food and drink that wont show up on their waist line while I analyze everything that I put into my shopping basket and eventually put in my mouth.  The naturally slender woman who only has to do gentle Yoga or token cardio for exercise while I sweat  and strain at the gym and at home to keep a waistline.     I try to sweep those negative, useless, thoughts out of my head only to return in no time.

Like an addict that hides their addiction from others, I haven’t told many people my true feelings.  I guess its about time for me to seek real help for my addiction.

Three Things I’m Thankful For

November 26th, 2009 § 5

043View from my last home - Kensington, CA

As I sit home on Thanksgiving day listening to Verdi Requiem, I look back at those few years (2002-2006) I was in a classical chorus where we performed this piece.  I realized despite some major setbacks over this past year, I am in a much better place now than I was back then.

A few things I’m thankful for:

  • No longer living in the Bay Area – I was born and raised in the Bay (Oakland, CA to be exact) and it wasn’t until I moved to Portland that I realized just how uncompromising that whole area is to me.  If you cant afford an overpriced home to buy or rent, you’re living in a not so great, crime ridden area.  My experience was pretty black and white. I’m thankful I was able to live in a breathtakingly beautiful neighborhood during my last few years there, but it was getting difficult to afford it – especially on disability.  The Bay Area has it good points, but unless you are “set” (ie. purchased a home 10+ years ago, or have a really good salary), you’re out of luck.  I will enjoy visiting family who’s still in the area though.  Fortunately for them, they are set.
  • Fitness – Going though a multiple sclerosis exacerbation back in the early spring had left me weak and out of shape.  Because I wasn’t very active (not by choice), I lost muscle tone and stamina. I recently joined a gym in my neighborhood and go there four days a week now.  I haven’t feel this good in almost a year!
  • My sister – I have a half sister that wasn’t a part of my life until recently.  She’s my father’s daughter and I met her for the first time when I was fourteen.  I saw her one other time ten years ago when I got married and didn’t see or speak to her after that until recently before I moved.  Its  a shame because she never lived more than a few miles away from me.  Ironically, we are closer than ever now despite being hundreds of miles apart.  We talk on the phone at least every week, text message often and send each other small gifts and cards. There are eleven years between us (she older), but it doesn’t feel that way at all.  I look forward to seeing her again when she comes to visit us in a few weeks.

I don’t think these thoughts of have come to mind had I not put on the music that reminded me of my recent past which is a direct contrast to life now.

Goodbye 2009

November 22nd, 2009 § 6

I know I’ve been MIA over the past few weeks, but I am alive and well.  This is my first full holiday season since the beginning of Green and Chic and it has me fully occupied.  The business side of me knows its the end of the year while I catch up with my business bookkeeping and the web store holiday preparations, but the other side of me cant believe its already Thanksgiving time.

2009 went by in a flash.  With all the major changes in life with the diagnoses, having to leave my job, losing my benefits, the pregnancy – and loss, and relocating, I guess its a good thing this year didn’t drag its feet.

I think the only way I’m going to look forward to 2010 and beyond is to have some short and long-term goals.  Since the Multiple Sclerosis diagnosis, I’ve inadvertently put the breaks on setting goals (especially long-term) in my life though I don’t fully understand why. I guess fear have a lot to do with it.  Fear of failure and disappointment if I don’t fulfill what I set out to do.  Questions such as how can I travel next year if I’m looking at over $6,000 in out of pocket medical expenses for MS treatment not including  my prescription drug co-payment.  It also doesn’t include general well-woman care and the dental work I’m facing.  I know it can be done. I know its a matter of remapping my life and thinking outside the invisible force field I put up.

The question is, how?

Choices

November 10th, 2009 § 4

Last week I had my first appointment with a Neurologist at the Oregon Health & Science University since I arrived in Portland almost two months ago.  The first appointment with a new doctor (especially a specialist) is usually the most difficult for me.  Its almost like going on a blind date with someone you’ve never even spoke with over the phone or exchanged emails with.  Yes, he was cute…ha!  But in all seriousness, I think this appointment went pretty well though I think I left with more questions than I had coming in.  I am going to have my second brain and T-spine and first C-spine MRI tomorrow evening to see what’s been going on since January when I had my first MRIs.  I still don’t know how I feel about him yet, but I will meet with him again next week to go over my MRI results.

With MS, it seems like our only choice is a choice of several drugs to take to hopefully slow down the disease progression.  Pharmaceuticals is one of my worst fears.  I don’t even take over the counter medications. I don’t remember the last time I had an aspirin. I usually only take them when I really have to like when I had to take Prednisone last spring for a drug eruption.  It was a pharmaceutical to counteract horrible side effects from another pharmaceutical ironically.

I do my drug research, but it always leave me with an icky taste in my mouth.  Everyone else I know with MS are quick to jump on the drugs and I feel like I’m the only one who pulls away in fear.  I know its a choice, but its one of the most difficult choices I’ve ever had to make.

I am here! (The Financial Cost of Multiple Sclerosis)

October 29th, 2009 § 2

I know its been a while since I last posted, so I’m going to give you a short update.

The last time I wrote, Steve had fallen and broken a rib.  As you can imagine, the first several days was the worst but he slowly started to get better.  He is pretty much at 90% now.  He still has some aches and pains, but he is able to be active, lift and workout.  This worst is definitely over!

A couple of weeks ago, he struggled with one of the nasty flu bugs that’s going around these days.  Thankfully, he was able to shake it off pretty quickly.  I am fine and lucky that I never caught what he did. (knock on wood!)

Multiple $clerosis

Despite some setbacks over the past few weeks, I do have some good news:  I was approved for the Oregon Medical Insurance Pool.  Its a state run health insurance program that helps people who normally cant get insurance due to medical conditions.  Its not free or even low-cost by any means, but at least its available to me and so many other people who need it.  Multiple Sclerosis is a very expensive disease to have and the cost can be in the high tens of thousands of dollars a year.

The disease modifying drugs (or DMDs) alone can cost up to $30,000 year.  MRIs can be up to $5,000, and some doctors request them annually.  Then there are the doctor’s visits which can be quite frequent.  Some people may need to be hospitalized at one point or another. Many people are in physical therapy which I may need to start soon myself; and the right type of care isn’t cheap.  Then there is the need for medications to treat related symptoms.  Equipment and tools to make life a little easier or even possible such as canes, walkers, ankle-foot braces, wheelchairs, wheelchair lifts, cooling devices, hand controls for cars, home modifications including the need to move to a single story home or move to a more centralized location (and the list goes on) adds more financial strain to a person with MS and their families.  Though many people with MS are able to keep working, many of us are on temporary or permanent disability which means less money in our pockets.  And just because a person has MS, doesn’t mean they are not struggling with other unrelated health issues.

The average age of onset for MS is between the ages of 20 and 40, so many of us will have a long time to deal with these financial pressures.

The Two Dollar Bill

October 17th, 2009 § 5

us two dollar billPhoto by wwarby

A few months ago, I was organizing my coin collection in preparation for packing it for the move.   Lost in deep though, I was going back to a time when I had this massive two dollar bill collection.  OK, it wasn’t “massive”, but to me, four two dollar bills was a lot.  This two dollar bill collection along with a 1925 Chinese Yen that was given to my mother by an exchange student when she was  in high school vanished into thin air one day.  Have you ever had something that you cherished or at least valued disappear without a trace.  You know where you left it for safe keeping, but now its gone.  You searched high and low, in other people’s bedrooms, in shoe boxes, closets, and so on, and you find no crumbs or footsteps to follow.  Eventually you come to terms with the unexplainable loss.

Looking back, I think my father may have taken it.  He was at the height of his drug addiction and was totally out of control.  Other items vanished from the house during that time as well, including a vacuum cleaner, a television, and a gold and jade ring that a woman from my church had made for me when I graduated high school.  He was so out of control at the time that when my mother filed for divorced and had to pay him for half the value of the home, he carried the cash with him (high five figures) in a suitcase and went though it in a matter of months.

Going back to the money and coin collection, I wondered if I would ever find another two dollar bill to add to my currency collection.   I put everything away and moved on with my day.

Later that afternoon, I went to a local wine store with Steve.  Outside this particular store, there is a front yard and seating area that I used to frequent when I needed a semi quiet place to sit.  Steve was sitting on a bench facing the street which left me no choice but to sit with my back facing the street. I’m not comfortable having my back towards the street, when outside or sitting with my back to the door in a restaurant. I decided to just deal with it since we were not planning on being there long anyway.  As I sat with my back to the street and facing the wine store, and landscaping, I noticed the magenta colored Bougainvilla that was in bloom.  For some reason, I was always memorized by that particular flower and that day was no exception.

As I sat staring at the flowers and chatting with Steve, I noticed something laying on the ground beyond the Bougainvilla on the side of the small building.  It was green and looked like money.  I didnt think it was actually money because it was so deep in the bushes.  It wasnt possible.  I decided to go with my instinct and check anyway.  As made my way to the vine, it did look more and more like a green dollar bill.  When I was about five feet awawy from it on the side of the building, there was no question that it was money. Despite it laying in the bushes, it was very clean and in good condition.  I reached down to pick it up, grabbed it and made my way back to my seat on the bench.

I looked at it and it was a two dollar bill.

My Tipping Point

October 2nd, 2009 § 13

SunrisePhoto by: snappED_up

On Saturday night, I think I reached my tipping point. When I’m in a difficult situation large or small, I usually try to cover it over with any band-aid I can find with until I finally snap.  Not the type of snapping  where it would land someone in the hospital and me in jail, but the type of snapping where I feel like I’m at a place of no return. Falling down a deep hole, crying uncontrollably, and not believing the sun will ever rise again.

The Crashing Sun

It started late Saturday night when I was in the upstairs bedroom wrapping up whatever I was doing to get ready for bed. Steve followed me up to converse with me for a few minutes and then headed back downstairs to finish preparing his late night snack.  A few seconds later, I heard him fall down the flight of stairs.  He fell down all twelve stairs down the steep staircase. When I got down to where he was, he was up pacing the kitchen, scared and confused. I was shaking, scared and confused myself.  He wanted some space to process what just happened, so I went back up to the bedroom to cool out and calm down. For about five minutes, I couldn’t stop shaking and I couldn’t move.  Every breath was a challenge. The issue with Multiple Sclerosis is that it makes you hypersensitive to anything, large or small.   Sharp and loud sounds and any kind startles me.  Anything that’s remotely scary puts me in panic mode. Common life stressors wreaks havoc on my body.

I decided to rest a little upstairs when I heard him scream. When he yelled out, it felt like every nerve in my body was connected to an electrical socket. I went downstairs and he could not move.  Apparently he cracked a rib when he fell but had a delayed reaction. He felt something (his rib) move a little.  He could not move, walk, stand, and had to be helped to the sofa. It was late so he just wanted to stay where he was and sleep. I made a covered icepack, got him some pillows and blankets, and made sure he was breathing OK.  I went upstairs to lay down and that’s when I had reached my tipping point.  It was my reaction to what happened with Steve injuring himself and my physical and emotional reaction to it.

Since I was diagnosed in January, I have had every reason in the world to not really face how I’m feeling about my diagnoses.  Work, health problems directly and indirectly related to MS, the pregnancy, going on disability, health insurance issues, moving and so on has distracted me from my emotions. Add to the fact that I’ve been telling myself that ‘other people have it worse than I do’ in an effort to comfort myself has pulled me away from myself. I dont think I’ve ever cried as much as I did that night.  Steve falling was just the straw that broke the camels back.  Though no one knows what their future will bring, having this disease has me more afraid that I have ever been.

Slowly Rising Again

For the next three days, I was his 24/7 nurse.  He had to be helped on and off the sofa where he still has to sleeps at night. We still cant sleep together because we only have a full size bed right now and the movement  from having someone sleeping next to him is too much to handle. Going to the bathroom, showering, eating – every move had to be thought out.  Coughing and sneezing is the worst. He is slowly able to start taking care of himself and by Thursday, we were able to go out together to walk the neighborhood.  I am doing better also.

Though I still have a lot of unanswered questions and questions that are sitting dormant waiting to be asked, I am sitting in my home office watching the sun slowly rise in the east though the dark clouds from last night’s rain.

Arachnophobia

September 27th, 2009 § 7

A few days after we moved in, I spent the morning getting some business and house related work done, relieved that our high-speed Comcast internet, phone and fax lines are up.  Its hard to get much work done when you’re constantly leaving the house for internet access.  I work out, shower and make an attempt to get dressed before I realized that most of my clothes are either still packed or downstairs in the basement on a clothing rack that I use to dry after running a load of laundry the night before.  I slowly make my way down the creepy basement stairs clad in nothing but my bra, panties and flip-flops. At that point, I am still timid about going down to the slightly scary basement.  I was making my way down until I saw something that looked like a giant spider on a wall to my far right.

I figured that “thing” was way too big to be a spider.  I know it was a living creature of some sort because even from about 25 feet away, I saw that it had legs. Hairy legs. I hoped to God that it didn’t have eight.  I got a little closer to it and my blood pressure rose, my heart started to pound, my mouth got dry and I felt the color from my skin fading away.  It was a spider.  It wasn’t a typical scary “normal” sized spider – this sucker was huge!  Take a trantaurula and divide it in half size wise.     I cried out to Steve who was already deeper into the basement working out. I wanted him to kill get rid of this creature.  He was annoyed that I was interrupting him and told me to wait until he was done.  In a panicky voice I tried to tell him that this spider was not your typical spider.  I hate feeling so fearful, vulnerable and dependent on someone else, but in this case, all ego was tossed out the window. After about a minute of going back and forth, he finally got up, frustrated that I interrupted what he was doing.  After seeing this spider, he finally understood what the big deal was.  Even he was taken aback.

The Origin

Now before you tell me that spiders are our friends because they eat mosquitoes and other undesirable insects, let me remind you that a true phobia is an irrational fear.  There really isn’t an identifiable reason why someone should fear something.  My phobia of spiders is not based on a memory or bad experience.

My first spider memory happened when I was very young.  I must have been one and a half when I was laying in my crib one night.  I have very early childhood memories and this was one of my first.  I remember feeling some anxiety since my mother was going to go to work soon.  It was late in the evening and she worked nights as an ICU LVN and went to school during the day to become an RN.   I missed her terribly at night when she went to work.  I remember not understanding why she had to go and leave me so often.  I remember being told about the bills that needs to be paid, but that meant nothing to me.  When I was laying in my crib, I noticed a black spider crawling across the pink wall in my bedroom.  At that point, I remember feeling fear.  Somehow, I knew it was a spider before someone told me it was.  How I knew that, I dont think I will ever know.  Past life experience perhaps?  Because I felt fear, I cried for my mother to come in.  My mother and brother came in, got rid of the spider and all was well again.

I was always afraid of spiders though other insects never bothered me.  I have been stung by bees and wasps, but I don’t have a phobia of them.  I have a healthy fear, but not the ‘life flashing before my eyes’ type of fear. Though one of the most common phobia is of snakes, they dont even bother me. My typical phobic reaction is what I mentioned above when I saw the giant spider.  Other reactions can include, shortness of breath, nausea, shaking, crying, sweating and worse at times.  It gets stranger: spider webs (even without a spider) bother me too.

During my entire childhood, my mother tried to reason with me with the “spiders are our friends” statements.  She even got me Charlotte’s Web by E.B. White in an attempt to lighten my view of spiders.  Though I loved the book, I could never see “Charlotte” (the spider)  in any of the spiders I’ve came across in real life.

Now that I’m in a new space, I am a bit timid when I enter rooms, especially the basement.  Unlike our previous house, we don’t have those super sealed double paned windows that helped in keeping the spiders and other bugs out. We are blessed with a garden full of tomatoes and summer squash but heading back there to harvest is always an adventure.

I wonder if I will ever shake my phobia of spiders. I will gladly pay money just so that I can enjoy gardening instead of sweating in fear every time I got out into the yard, or having my heart stop when I see a speck on the wall.

We are here!

September 15th, 2009 § 6

We arrived in Portland on late Sunday morning after many months of preparation, weeks of packing and  days and hours of driving up from the Bay Area.  “Fried” is an understatement of how I feel now, but its good to be at the tail end of this transition.  Our next step is the transfer our businesses across state lines, change addresses, do the whole automobile thing (registration, drivers license, insurance) notify friends and family of our new location and get acquainted with our new city.  My health insurance is another huge step but hopefully it wont be so painful   Not having regular Internet access when you run businesses from home is difficult, but we are getting by with local cafes until Comcast arrives Wednesday.  We are in the “Alberta Arts” district and there isn’t a shortage of things to do and places to go.  We will be in our place for a little less than a year which will give us a chance to transition and learn more about the city before settling into something more permanent.

It all hasn’t sinked in yet.